Hell of a tough day today……….. but I think a productive and significant one 🙂
Today was the day I met face to face with the NHS regarding my complaint about their Mental Health “System” and the pain, frustration and destruction it causes. The guy I met with was very good, he seemed to be caring and genuinely interested in what I had to say, he is yet another good good person within a pathetic, not fit for purpose system.
I am fully aware that we are lucky to have an NHS and I am fully aware they save and make lives better again and again, hour after hour, day after day, etc… One of the things I need to remind you of is that part of the reason I made the complaint is because people with in the system (staff) basically asked me to, which I think says a lot…..
We spoke for over an hour, it was quite painful to go through everything again and difficult because my memory isn’t brilliant at the moment so things can get confused. As I was walking to the place I could feel myself getting anxious, going inside myself, walking along with Sun Glasses on, hood up, ear phones in blocking out the outside world.
Sitting in the waiting room, with a nice cup of tea, I got out my little red note book and pen and wrote down the date, the place and who I was seeing (like a numpty!), throughout the whole meeting I didn’t write another thing. As I said earlier the guy I saw seemed genuinely interested in what I had to say, he genuinely seemed to care and understand the pain the system had caused me, and causes others, because of this blog I have stories from other people who have been treated worse than me. You might be thinking “he was there to seem interested and caring they have pulled the wool over your eyes”, but I am not a stupid man and through my work I have sat in many meetings and from my days as an active alcoholic I know how to manipulate a situation and I know if someone is manipulating me.
I’m not going to go into any more detail about the meeting as I don’t think it is the time, but I do want to talk about how I felt afterwards. Coming out of the meeting I felt good, I felt as if I had achieved something :), as I walked down to my local town centre I could feel the pressure building in me, the buzzing in my head was getting very loud, I seemed to be getting very slow and weak and I felt strangely paranoid. When I got to the town centre I struggled to go into the shops I wanted to, pathetic I know, but I managed to do a couple of the things I wanted to do. Then all I could think about was getting home and the fact that I had walked and it was going to take me 30 minutes to get back. The further I walked the harder it got and at one point I wanted to just sit down in a bus stop and cry, by the time I turned into my road I was in tears and struggling a little bit to breathe. I couldn’t face the lunch I had bought and ended up going to bed just to stop the buzzing in my head.
I am not after sympathy, I am not trying to over dramatise my day, I am not doing “Woe is me”, the reason I have written this fairly pointless post is just to put it down in black and white and to stress how much effort and pain went into me going through with my complaint. Being ill, accepting you are ill, asking for help are very difficult things for a lot of people. Being ill, accepting you are ill, asking for help shows you have failed at life, that you are unable to cope with life. IN ASKING FOR HELP I HAVEN’T FAILED, IF YOU NEED TO ASK FOR HELP YOU HAVEN’T FAILED THERE IS NO SHAME IN ASKING FOR HELP AND THERE IS NO SHAME IN BEING MENTALLY ILL “IT IS WHAT IT IS“. I know there are a lot of people out there in much worse situations than me but this is my situation, this is my pain, this is my disappointment in me and this is my life that I need to get back on track.
You probably know someone struggling with Mental Illness, please encourage them to fight, please show them you care, please don’t patronise them, please understand that they are not lazy or just a bit low, please understand that a good holiday will not fix them. They are ill, when people say “odd” things like “there is a buzzing in my head”, “there is a fog in my head”, “I can’t get out of bed”, “I can’t face leaving the house” they are not making things up, they are trying to explain something that is “real” and that they don’t understand themselves.
Keep smiling 🙂
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